Palliative Care for Children
Palliative (pal-lee-uh-tiv) care is comprehensive treatment of the discomfort, symptoms and stress of serious illness. It is a key part of care for children living with a serious illness and an important source of support for their families. This website provides information and resources for pediatric patients, their families, and their health care providers.
As a health care provider, you are uniquely positioned to discuss options for palliative care with your pediatric patients and their families. This conversation can help educate families about palliative care, ensure clear communication between provider and family, and build their trust and confidence in you. Get tools and resources to help you discuss palliative care with your pediatric patients and their families at www.ninr.nih.gov/conversationsmatter-providers.
Dealing with the diagnosis of a serious illness in a child is difficult for the entire family. It is important that your child, your family, and you all get the support and care you need during this hard time. Learn how palliative care can help at www.ninr.nih.gov/conversationsmatter-patients.
About the Palliative Care: Conversations Matter™ Campaign
The National Institute of Nursing Research (NINR), a part of the National Institutes of Health, developed the Palliative Care: Conversations Matter™ campaign to raise awareness of pediatric palliative care and to help health care professionals and patients discuss palliative care earlier. It can be hard for health care professionals to talk about palliative care with their patients—particularly with children. Many patients and their families have never heard of palliative care, and they are not aware that it can give them extra support in dealing with a serious illness. This is especially true when talking about palliative care for children.
To develop the Palliative Care: Conversations Matter™ campaign, NINR brought together parents and palliative care clinicians, scientists, and professionals to give their input and expertise on what they felt was needed in the field. The Institute pilot tested the health care provider campaign materials for nine months in two health care systems to gather feedback from an interdisciplinary group of health care providers.
NINR hopes that this campaign will increase the use of palliative care for children living with serious illnesses or life-limiting conditions.
For more information, please contact:
Adrienne Burroughs, MHS
Office of Communications and Public Liaison