For Providers

Talking About Palliative Care with Your Pediatric Patients and Their Families.Mother and child patient speak to health care provider

As a health care provider, you are uniquely positioned to discuss options for palliative care with your pediatric patients and their families. This conversation can help educate families about palliative care, ensure clear communication between provider and family, and build their trust and confidence in you.

NINR’s Palliative Care: Conversations Matter® campaign offers evidence-based resources for health care providers and for parents and families of children living with serious illnesses or life-limiting conditions. The materials are designed to assist you with starting and continuing conversations about pediatric palliative care with your patients and their families.

Conversations Matter Customizable Tear-off Pad

The Palliative Care: Conversations Matter® Customizable Tear-off Pad

This tear-off pad provides readily available tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. Learn more about the tear-off pad and download the PDF.

The Palliative Care: Conversations Matter® Campaign Videos

These informational video vignettes highlight the importance of palliative care for pediatric patients and provide ideas about how to start and manage a palliative care conversation with pediatric patients, their parents or caregivers, and their families. Watch the three short videos to get tips from NINR Director Dr. Patricia Grady and hear the personal story of a mother’s experience with pediatric palliative care. 

Additional NINR Palliative Care Resources

For a list of common questions you may receive from patients and suggested answers, please visit our "Palliative Care: Conversations Matter®" Frequently Asked Questions page.

NINR’s brochure, Palliative Care: The Relief You Need When You’re Experiencing the Symptoms of Serious Illness has general information about palliative care for adult patients. This brochure is available in both English and Spanish.

To read more about the kinds of palliative care research that NINR supports, please visit: http://www.ninr.nih.gov/researchandfunding/spotlight-on-end-of-life-research.

A summary of The Science of Compassion: Future Directions in End-of-Life & Palliative Care Summit is available at http://www.ninr.nih.gov/ResearchAndFunding/scienceofcompassion. Pediatrics was specifically addressed in the “Parents and Clinicians as Partners in Research” session and in a panel presentation from Dr. Pamela Hinds during “Plenary Session 1: Identifying Our Strengths.”

For more information, please contact:

Adrienne Burroughs, MHS
Office of Communications and Public Liaison
301-496-0256
info@ninr.nih.gov

 

Posted Date: January 6, 2014