Brochures and Fact Sheets
COVID-19 is an emerging, rapidly evolving situation.
Brochures and Fact Sheets
In alignment with Office of Personnel Management guidance to protect the federal workforce and ensure continuity of operations, NINR staff will be delayed in processing orders for publications.
Many NINR publications are available to view and print online.
If you have questions about your order, please call (301) 496-0207 or email info@ninr.nih.gov. We appreciate your patience.
Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness
This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as:
- How do I know if my child or family needs palliative care?
- Does accepting palliative care mean our family is giving up on other treatments?
- How can my child’s pain be managed?
- How can our family get palliative care?
A Family's Perspective - Family Stories
In "A Family's Perspective," four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.
Pediatric Palliative Care At-a-Glance Fact Sheet
The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:
- When can palliative care start?
- How does it work?
- And where is care provided?
Finding Family Support Resource Card
This resource about finding support is a 4"x9", double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.
The Palliative Care: Conversations Matter™ Customizable Tear-off Pad
This tear-off pad is for providers to use with their patients. It offers tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. Each pad contains 25 patient education sheets.
Spanish Language Publications
Cuidados paliativos para niños: Apoyo para toda la familia cuando su hijo vive con una enfermedad grave
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
Historias sobre cuidados paliativos pediatricos
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
Breve descripcion de los cuidados paliativos pediatricos
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
En busca de apoyo para la familia
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
The Palliative Care: Conversations Matter™ Customizable Tear-off Pad - Spanish
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
