Palliative Care: Conversations Matter - Easing Symptoms and Enhancing Lives

Palliative care provides comfort to your child and family.Mother walks with child patient in the hospital

Dealing with the diagnosis of a serious illness in a child is difficult for the entire family. Palliative care can help.

NINR provides complimentary copies of our printed materials. To order copies, please send an email with your mailing address and requested number of copies to info@ninr.nih.gov or call 301-496-0207.

“Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness”

Pediatric Palliative Care brochure cover

This brochure, available in English and Spanish, provides an overview of pediatric palliative care and answers questions that parents and families may have, such as

How do I know if my child or family needs palliative care?
Does accepting palliative care mean our family is giving up on other treatments?
How can my child’s pain be managed? 
How can our family get palliative care? 
 
 
 
 
 
 
The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as: 
 

When can palliative care start? 
How does it work? 
And where is care provided? 

 

 


Finding Family Support Resource Card

Finding SupportThis resource about finding support is a 4”x9”, double-sided card with sections about types of support families may want to access – things like sibling support, respite care and school resources.
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A Family's PerspectiveA Family’s Perspective – Family Stories

 
In “A Family’s Perspective,” four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.
 

 

 

 

Videos:

Care for Children With Serious Illnesses

This two and half minute video provides a straightforward overview of pediatric palliative care for families, providers and organizations. The video uses an animated approach to guide viewers through the services that pediatric palliative care encompasses.

El tratamiento de niños con enfermedades graves 

 

Spanish-captioned version of the video above.

Pediatric Palliative Care: A Personal Story

This vignette shares the story of Rachel—a pediatric patient with neuroblastoma—and her family. The story demonstrates how palliative care can positively influence a patient’s and family’s experience with illness. Video length: 3 min, 58 sec.

Pediatric Palliative Care: A Personal Story Video Screenshot

 

 

 

 

 

 

 

 

Parent speaks to health care providerAsk about Palliative Care

If you think palliative care could help your child, your family or you, ask for it now. Talk with your child’s health care provider about palliative care.

To see whether a hospital in your area offers a palliative care program, you can go to the Palliative Care Provider Directory of Hospitals Exit Disclaimer to search by state and city.

 

Frequently Asked Questions

For a list of common questions about pediatric palliative care, visit our "Palliative Care: Conversations Matter®" Frequently Asked Questions page.
 

General Information

For general information about palliative care, download NINR’s brochure, Palliative Care: The Relief You Need When You’re Experiencing the Symptoms of Serious Illness. This brochure is available in both English and Spanish.
 

All materials    En Espanol    

Outreach and Media    FAQs and Resources

For Health Care Providers    Providers Perspectives