Talking About Palliative Care with Your Pediatric Patients and Their Families.
As a health care provider, you are uniquely positioned to discuss options for palliative care with your pediatric patients and their families. The materials below are designed to help you discuss palliative care with your pediatric patients and their families.
This toolkit can help you facilitate a workshop to inform your peers about pediatric palliative care and the Palliative Care: Conversations Matter® campaign. The toolkit contains a presentation, promotional materials, and educational resources.
The Palliative Care: Conversations Matter® Customizable Tear-off Pad
This tear-off pad provides readily available tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. It also includes customizable patient education sheets that can be filled out during patient visits. Download your free copy in English [PDF] or Spanish [PDF].
NINR provides complimentary print copies of this tear-off pad. One pad contains 25 copies of patient education sheets. To order print copies, please send an email specifying the language you prefer and your mailing address to firstname.lastname@example.org or call 301-496-0207.
Watch the three short videos to get pediatric palliative care tips and hear the personal story of a mother’s experience with pediatric palliative care.
Pediatric palliative care team members share their experiences through a series of interviews.
Additional NINR Resources
For a list of common questions you may receive from patients and suggested answers, visit our Palliative Care: Conversations Matter® Frequently Asked Questions page.
NINR’s brochure, Palliative Care: The Relief You Need When You’re Experiencing the Symptoms of Serious Illness has general information about palliative care for adult patients. Available in both English and Spanish.
Read more about the palliative care research that NINR supports.
A summary of The Science of Compassion: Future Directions in End-of-Life & Palliative Care Summit is available here. Pediatrics was addressed in the “Parents and Clinicians as Partners in Research” session and in a presentation from Dr. Pamela Hinds during “Plenary Session 1: Identifying Our Strengths.”
For more information, please contact: