Media Contact Information

Edmond Byrnes, PhD - NINR Office of Communications and Public Liaison

Outreach Kit

The Palliative Care: Conversations Matter Outreach Kit:

Conversations Matter small ad C child and parent hands Help spread the word about pediatric palliative care and the  Palliative Care: Conversations Matter® campaign in your community. Click here to view or download informational resources that can be used to promote pediatric palliative care and help others understand what palliative care is and how it may be able to benefit their family.

The materials are easy to use in a wide variety of settings, whether you represent a hospital system, health care organization, business, non-profit organization, government agency, or community group.




Web Badge and banner


News Releases

NIH Resources to Help Families Navigate Pediatric Palliative Care, May 2016

New Pediatric Palliative Care Publication for Spanish-speaking Families, Nov. 2015

New NIH brochure highlights the value of palliative care for children living with serious illnesses, Jul. 2015

NIH makes palliative care more attainable for pediatric patients and their families, Jan. 2014

Press and Other Coverage

New Resources for Pediatric Palliative Care (JAMA, 2016)

National Institute of Nursing Research Provides Palliative Care Support Materials for Patients, Families (HemOnc Today, 2016)

National Nurses Week Highlight The Power Of Palliative Care (KAWC, Colorado River Public Media, 2016)

#PEDPC Twitter Chat with @NINR (Storify, 2015)

Macauley Reports on NIH Pediatric Palliative Care Project (University of Vermont, 2015)

How Do You Start the Palliative Care Conversation in the Pediatric Setting? (ONS Connect, 2014)

Conversations Matter: Let’s Talk about Palliative Care (PR Newswire, 2014)

Palliative Care: Increasing the quality of life for patients and families (Medline Plus, 2014)

Campaign Raises Awareness of Pediatric Palliative Care (Cornerstone Blog, 2014)

Embracing Palliative Care For The Youngest Patients (Vermont Public Radio, 2014)

Campaign Articles and Stories

Sample Drop-In Articles:

Pediatric Palliative Care Resources Available for Spanish-speaking Families

A Campaign to Ease Symptoms and Enhance Lives

5 Things You Should Know about Palliative Care for Children

A Family’s Perspective: Pediatric Palliative Care Stories

Rachel’s Story (video vignette)

About Pediatric Palliative Care (video vignette)


About the Campaign        All Materials

FAQs and Resources        en Español