On January 12, 2015, NINR hosted an NIH briefing on the Institute of Medicine (IOM) report, Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Video of the briefing is now available on the NINR YouTube channel.
The IOM’s consensus report Dying in America identified "persistent major gaps in care near the end of life that require urgent attention from numerous stakeholder groups." The report committee made comprehensive recommendations in the areas of care delivery, clinician-patient communication and advance care planning, professional education and development, payment systems and policies, and public engagement and education.
The briefing brought together end-of-life and palliative care (EOLPC) experts from across the country to illustrate the report’s findings and highlight noteworthy next steps for research to enhance American end-of-life care. The discussion made connections between scientific research and its potential to improve the quality of patient outcomes at the end of life.
To assist with navigating the video, the briefing agenda is below with timestamps for each section to enable viewers to skip directly to their preferred presentations. To view the video, please visit NINR's YouTube channel at the following link.
- Welcome (1:42)
Dr. Patricia A. Grady, Director, NINR
- Opening Comments and Panel Introductions (5:50)
Mr. David Walker, former U.S. Comptroller General (Co-Chair, IOM Committee)
- Presentation of the IOM Report, Dying in America
Executive Summary (10:04) – Mr. David Walker
- Potential Areas for Research (13:13)
- Dr. Philip Pizzo, Stanford University School of Medicine (Co-Chair, IOM Committee)
- Dr. James A. Tulsky, Chief, Duke Palliative Care Center, Duke University School of Medicine and School of Nursing (IOM Committee member)
- Judith R. Peres, independent consultant (IOM Committee member)
- Dr. Adrienne Stith Butler, study director, Institute of Medicine
- Question and Answer Session (36:28)
The Q&A session included questions from organizations such as the Centers for Medicare and Medicaid Services, the Institute for Patient- and Family-Centered Care, the National Alliance for Caregiving and the George Washington Institute for Spirituality and Health.
- Final Comment (1:29:25)
Dr. Patricia A. Grady