NINR has released a Spanish language version of its brochure “Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness.” The brochure provides information for Spanish-speaking families about pediatric palliative care—a type of care that can reduce a child’s pain, help manage other distressing symptoms, and provide important emotional support to the child and family throughout the course of an illness.
Many patients and their families have never heard of palliative care or do not understand what it is, especially when talking about palliative care for children and teens.
“Palliative care aims to improve quality of life for both patients and their families. So it is important that health care providers offer information on what palliative care is and the options surrounding their child’s care,” noted NINR Director Dr. Patricia A. Grady. “By providing this information in an accessible format, we hope to properly equip families with the knowledge to make the best decisions for their child and entire family.”
The brochure is part of the Palliative Care: Conversations Matter® campaign. This NINR campaign aims to increase the use of palliative care for children with serious illness. The previous phase of the campaign offered evidence-based materials for health care providers. The campaign’s current phase focuses on resources for patients and families.
To view the news release about the brochure, visit www.nih.gov/news-events/news-releases/new-pediatric-palliative-care-publication-spanish-speaking-families.
To order or download a free copy of the brochure and learn more about the Palliative Care: Conversations Matter® campaign, visit www.ninr.nih.gov/conversationsmatter or call 301-496-0207.