Skip to main content

NINR Publications - Search

To order more than 50 copies of a publication, please call 301-496-0207, or email info@ninr.nih.gov.
Family Stories

A Family's Perspective - Family Stories

In "A Family's Perspective," four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.

Download PDF View HTML

At a glance

Pediatric Palliative Care At-a-Glance Fact Sheet

The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:

  • When can palliative care start?
  • How does it work?
  • And where is care provided?

Download PDF View HTML

Tear-off Pad

The Palliative Care: Conversations Matter™ Customizable Tear-off Pad

This tear-off pad is for providers to use with their patients. It offers tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. Each pad contains 25 patient education sheets. Enter 65 to order a full box.

Download PDF

Training Flyer

Training Grants Supported by NINR

This flyer provides a summary of the training mechanisms supported by NINR.

Download PDF

GPP Flyer

Graduate Partnerships Program for Graduate Nursing Students

The NINR Graduate Partnerships Program (GPP) in Biobehavioral Research offers up to five years of support for nursing students who are interested in entering or currently enrolled in a PhD program.

Download PDF

SGI Flyer

Summer Genetics Institute at the NIH

The Summer Genetics Institute (SGI) is a one-month intensive research training program at the NIH. The SGI provides a foundation in molecular genetics for use in research and clinical practice.

Download PDF

Boot Camp 2020

2020 Methodologies Boot Camp: Artificial Intelligence

The 2020 Boot Camp will explore the impact that Artificial Intelligence (AI) has in the evolving healthcare environment, and overall efforts to improve the quality of care for patients and families. 

Download PDF

NINR History Book

NINR History Book

NINR is pleased to announce the publication of our first history book in commemoration of the Institute's 25 years at NIH. The book explores the origins of NINR, the launching of nursing science at NIH, NINR's advancement from a Center to an Institute, and how nursing science has progressed in the past quarter century.

Download PDF

building momentum

Building Momentum: The Science of End-of-Life and Palliative Care. A Review of Research Trends and Funding, 1997-2010

This report looks at the trends in end-of-life and palliative care (EOL PC) research publications over the past 14 years, including information on federal research awards, funding patterns, and the contributions of public and private investments in EOL PC science.

Download PDF

PC Children

Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness

This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as: 

  • How do I know if my child or family needs palliative care?
  • Does accepting palliative care mean our family is giving up on other treatments?
  • How can my child’s pain be managed? 
  • How can our family get palliative care? 

Download PDF

 Finding Family Support Resource Card

Finding Family Support Resource Card

This resource about finding support is a 4"x9", double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.

Download PDF View HTML

Palliative Care Brochure Cover

Palliative Care: The Relief You Need When You Have a Serious Illness

NINR's palliative care brochure, describes a comprehensive treatment that helps reduce or eliminate the pain and other distressing symptoms of illness and medical treatments. 

Download PDF View HTML

NINR Grant Programs

NINR Grant Programs

This flyer describes the grant mechanisms currently in use by NINR including information on research grants, small business grants, research center grants, and training and career awards. The flyer also includes resources for those applying for NIH grants.

Download PDF

things to know

Things to Know: Caring for Someone at the End of Life

This overview offers basic things to know about end-of-life caregiving. Every caregiver’s experience is personal, but this sheet addresses some common questions, including:

  • What does a caregiver do?
  • What can you expect?
  • What kind of support can help?
  • How can conversations help?

Download PDF

caring

Caring for Yourself While Caregiving

This tip sheet suggests what you can think about, ask, and do to care for yourself while caring for someone nearing the end of life. Though it can be challenging, self-care is an important part of caring for others.

Download PDF

taking control

Taking Control of Caregiving

This tip sheet offers ideas about how to understand and plan for legal, financial, and other matters while caring for someone at the end of their life. Being prepared can help you feel more in control.

Download PDF

communicating

Communicating as a Caregiver

This sheet provides tips on communicating as a caregiver of someone nearing the end of life. Honest conversations can be opportunities for learning, relief, and support.

Download PDF

Strategic Plan 2016

NINR Strategic Plan: "Advancing Science, Improving Lives"

NINR's Strategic Plan seeks to harness the strengths of nursing science to power an ambitious research agenda that will meet current and future health care needs and anticipate future health challenges and priorities. The Plan is intended to not only serve as a guide for NINR research and training activities over the coming years, but also to provide a vision for nursing science for the next quarter century. Read the NINR Strategic Plan: Advancing Science, Improving Lives (complete PDF version, 3.0 MB).

Download PDF

Spanish Language Publications

Cuidados Paliativos

Cuidados Paliativos: El alivio que necesita cuando tiene sí­ntomas de una enfermedad grave

Para solicitar ejemplares impresos gratuitos, enví­e un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

Download PDF View HTML

PC Children Spanish

Cuidados paliativos para niños: Apoyo para toda la familia cuando su hijo vive con una enfermedad grave

Este folleto ofrece una descripción general de los cuidados paliativos pediátricos, como también respuestas a preguntas que puedan tener los padres y las familias. Por ejemplo:

  • ¿Cómo puedo saber si mi hijo o un familiar necesitan cuidados paliativos?
  • ¿Aceptar los cuidados paliativos significa que nuestra familia no va a continuar con otros tratamientos?
  • ¿Cómo se puede controlar el dolor de mi hijo?
  • ¿Cómo puede nuestra familia obtener cuidados paliativos?

Download PDF

 Historias

Historias sobre cuidados paliativos pediatricos

En "A Family’s Perspective" (Desde una perspectiva de familias), cuatro familias comparten sus experiencias con los cuidados paliativos pediátricos y la manera en que la atención que reciben afecta sus vidas y las de sus hijos. Las historias destacan los beneficios de los cuidados paliativos pediátricos y brindan las perspectivas de las familias sobre este tipo de atención.

Download PDF View HTML

breve descripcion

Breve descripcion de los cuidados paliativos pediatricos

La hoja de datos breves, diseñada como un documento doble faz de 8.5” x 11”, ofrece una descripción general resumida de los cuidados paliativos pediátricos y también respuestas a algunas preguntas comunes que pueden tener las familias. Por ejemplo:

  • ¿Cuándo se puede comenzar a recibir los cuidados paliativos?
  • ¿Cómo funcionan?
  • ¿Dónde se brindan los cuidados?

Download PDF View HTML

Tear-off Pad

The Palliative Care: Conversations Matter™ Customizable Tear-off Pad - Spanish

Estos materiales con hojas para desprender ofrecen a los proveedores de atención médica consejos y recursos inmediatos, al igual que respuestas a preguntas comunes acerca de los cuidados paliativos con el fin de ayudar a fomentar conversaciones interactivas con los pacientes y sus familias o con las personas encargadas del cuidado de paciente. También incluye hojas educativas para pacientes que se pueden personalizar y completar durante las visitas de los pacientes. Each pad contains 25 patient education sheets. Enter 65 to order a full box.

Download PDF

Apoyo familia

En busca de apoyo para la familia

Este recurso para encontrar apoyo es una tarjeta doble faz de 4” x 9”, con secciones acerca de los diferentes tipos de apoyo a los cuales las familias podrí­an querer acceder, como: apoyo para hermanos, servicios de relevo y recursos escolares.

Download PDF View HTML

cuidese

Cuí­dese mientras cuida de otros

Para solicitar ejemplares impresos gratuitos, enví­e un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

Download PDF

Como Cuidar

Cómo cuidar de una persona al final de su vida

Para solicitar ejemplares impresos gratuitos, enví­e un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

Download PDF

comunicacion

Comunicación como cuidador

Para solicitar ejemplares impresos gratuitos, enví­e un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

Download PDF

tome control

Tome control del cuidado

Para solicitar ejemplares impresos gratuitos, enví­e un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

Download PDF