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End-of-Life CaregivingGeneral Palliative CarePalliative Care for ChildrenSpanish Language Publications

End-of-Life Caregiving

things to know

Things to Know: Caring for Someone at the End of Life

This overview offers basic things to know about end-of-life caregiving. Every caregiver’s experience is personal, but this sheet addresses some common questions, including:

  • What does a caregiver do?
  • What can you expect?
  • What kind of support can help?
  • How can conversations help?

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caring

Caring for Yourself While Caregiving

This tip sheet suggests what you can think about, ask, and do to care for yourself while caring for someone nearing the end of life. Though it can be challenging, self-care is an important part of caring for others.

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taking control

Taking Control of Caregiving

This tip sheet offers ideas about how to understand and plan for legal, financial, and other matters while caring for someone at the end of their life. Being prepared can help you feel more in control.

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communicating

Communicating as a Caregiver

This sheet provides tips on communicating as a caregiver of someone nearing the end of life. Honest conversations can be opportunities for learning, relief, and support.

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General Palliative Care

building momentum

Building Momentum: The Science of End-of-Life and Palliative Care. A Review of Research Trends and Funding, 1997-2010

This report looks at the trends in end-of-life and palliative care (EOL PC) research publications over the past 14 years, including information on federal research awards, funding patterns, and the contributions of public and private investments in EOL PC science.

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Palliative Care Brochure Cover

Palliative Care: The Relief You Need When You Have a Serious Illness

NINR's palliative care brochure, describes a comprehensive treatment that helps reduce or eliminate the pain and other distressing symptoms of illness and medical treatments. 

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Palliative Care for Children

Family Stories

A Family's Perspective - Family Stories

In "A Family's Perspective," four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.

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Tear-off Pad

The Palliative Care: Conversations Matter™ Customizable Tear-off Pad (1 Box - 65 Tear Pads)

This tear-off pad is for providers to use with their patients. It offers tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. Each pad contains 25 patient education sheets. Each order of one box includes 65 tear pads.

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PC Children

Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness

This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as: 

  • How do I know if my child or family needs palliative care?
  • Does accepting palliative care mean our family is giving up on other treatments?
  • How can my child’s pain be managed? 
  • How can our family get palliative care? 

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 Finding Family Support Resource Card

Finding Family Support Resource Card

This resource about finding support is a 4"x9", double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.

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Pediatric Palliative Care Fact Sheet

Pediatric Palliative Care At-a-Glance Fact Sheet

The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:

  • When can palliative care start?
  • How does it work?
  • And where is care provided?

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Spanish Language Publications

Cuidados Paliativos

Cuidados Paliativos: El alivio que necesita cuando tiene síntomas de una enfermedad grave

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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PC Children Spanish

Cuidados paliativos para niños: Apoyo para toda la familia cuando su hijo vive con una enfermedad grave

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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 Historias

Historias sobre cuidados paliativos pediatricos

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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breve descripcion

Breve descripcion de los cuidados paliativos pediatricos

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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Tear-off Pad

The Palliative Care: Conversations Matter™ Customizable Tear-off Pad (1 Box - 65 Tear Pads) - Spanish

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207. Each order of one box includes 65 tear pads.

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cuidese

Cuídese mientras cuida de otros

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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Como Cuidar

Cómo cuidar de una persona al final de su vida

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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comunicacion

Comunicación como cuidador

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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tome control

Tome control del cuidado

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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Apoyo familia

En busca de apoyo para la familia

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

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