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Selected CDE References

Doctor with a patient

Advancing Symptom Science Through Use of Common Data Elements. The purposes of this article are to (a) recommend best practices for the use of CDEs for symptom science within and across centers; (b) evaluate the benefits and challenges associated with the use of CDEs for symptom science; (c) propose CDEs to be used in symptom science to serve as the basis for this emerging science; and (d) suggest implications and recommendations for future research and dissemination of CDEs for symptom science.

Implementing Common Data Elements Across Studies to Advance Research. This article discusses the philosophy of using common data elements across research studies and illustrates their use by the processes in a developmental center grant funded by the National Institutes of Health.

Envisioning the Future in Symptom Science. The purpose of this article is to describe and recommend ways our profession can accelerate knowledge development in symptom science and stimulate new frontiers of inquiry and policy. These recommendations include incorporating common tools and measures in our research, developing and maintaining a registry of common data elements (CDEs), leveraging the potential of “big data,” investigating ways to manage symptoms in context and clusters, considering symptom trajectories, and promoting policy initiatives focused on symptom management to improve health outcomes and patient and family quality of life.

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