Brochures and Fact Sheets

NINR’s Palliative Care: Conversations Matter® campaign offers evidence-based materials for health care providers and for parents and families of children living with serious illnesses.

NINR provides complimentary copies of our printed materials. To order copies, please send an email with your mailing address and requested number of copies to info@ninr.nih.gov or call 301-496-0207.

Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness

pediatric palliative care brochure

This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as:

  • How do I know if my child or family needs palliative care?
  • Does accepting palliative care mean our family is giving up on other treatments?
  • How can my child’s pain be managed?
  • How can our family get palliative care?

Spanish Pediatric Palliative Care brochure - Cuidados paliativos para ninos: Apoyo para toda la familia cuando su hijo vive con una enfermedad grave

spanish pediatric palliative care brochure

This Spanish-language translation of NINR’s pediatric palliative care brochure provides an overview of pediatric palliative care and answers questions that parents and families may have.

 

Pediatric Palliative Care At-a-Glance Fact Sheet

Pediatric Palliative Care Fact Sheet cover

The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:

  • When can palliative care start?
  • How does it work?
  • And where is care provided?

Finding Family Support Resource Card

Finding Family Support Resource Card

This resource about finding support is a 4"x9", double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.

 

A Family’s Perspective – Family Stories

family stories booklet

In "A Family’s Perspective," four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.
 

The Palliative Care: Conversations Matter® Customizable Tear-off Pad

Palliative Care Conversation Matter, customizable Tear-off pad

This tear-off pad - available in English or Spanish  - is for providers to use with their patients. It also includes customizable patient education sheets that can be filled out during patient visits. The order information is at the top of this page.

 

Return to main page

Arrow UpBack to Top