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Palliative Care Resources

Notice to Limited English Proficient Individuals

NINR provides certain materials in Spanish. These materials are available free of charge. If you need more information about available resources in your language, please call 301-496-0207, or email us at info@ninr.nih.gov.

Palliative Care Brochure Cover Palliative Care: The Relief You Need When You Have a Serious Illness

NINR’s palliative care brochure, describes a comprehensive treatment that helps reduce or eliminate the pain and other distressing symptoms of illness and medical treatments. To learn more about why NINR developed the palliative care brochure, visit https://www.ninr.nih.gov/newsandinformation/publications/palliative-care-brochure.

This publication is available in PDF and HTML formats.

Also available in Spanish:

Spanish Palliative Care Brochure CoverCuidados Paliativos: El alivio que necesita cuando tiene síntomas de una enfermedad grave

For Spanish-language information on why NINR developed the palliative care brochure, visit https://www.ninr.nih.gov/newsandinformation/publications/folleto-en-linea-sobre-cuidados-paliativos.

This publication is available in PDF and HTML formats.

Pediatric Palliative Care Brochure coverPalliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness

This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as: 

How do I know if my child or family needs palliative care?
Does accepting palliative care mean our family is giving up on other treatments?
How can my child’s pain be managed? 
How can our family get palliative care? 

To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.

Also available in Spanish: 

PC-children-brochure-cover-spanish.jpgCuidados paliativos para niños: Apoyo para toda la familia cuando su hijo vive con una enfermedad grave

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

A Family's Perspective Booklet

A Family’s Perspective – Family Stories

In “A Family’s Perspective,” four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.

To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.

Also available in Spanish:

Historias sobre cuidados paliativos pediatricos

Historias sobre cuidados paliativos pediatricos

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

 

At-a-Glance Fact Sheet

Pediatric Palliative Care At-a-Glance Fact Sheet

The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:

• When can palliative care start?
• How does it work?
• And where is care provided?

To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.

Also available in Spanish:

Breve descripcion de los cuidados paliativos pediatricosBreve descripcion de los cuidados paliativos pediatricos

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

 

finding-support-card.JPGFinding Family Support Resource Card

This resource about finding support is a 4”x9”, double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.

To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.

Also available in Spanish:

finding-support-card-spanish.JPGEn busca de apoyo para la familia

Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.

 

Palliative Care Conversation Matter, customizable Tear-off pad

The Palliative Care: Conversations Matter® Customizable Tear-off Pad

This tear-off pad - available in English or Spanish - is for providers to use with their patients. It offers tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers. Learn more about the tear-off pad and download the PDF.

 

Building Momentum report cover

Building Momentum: The Science of End-of-Life and Palliative Care. A Review of Research Trends and Funding, 1997-2010

This report looks at the trends in end-of-life and palliative care (EOL PC) research publications over the past 14 years, including information on federal research awards, funding patterns, and the contributions of public and private investments in EOL PC science.

 

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